A CIDP Poem: She laughs.

Poetry

Dear Friend,

My dad has a rare chronic illness called CIDP.

What is CIDP?


It’s a chronic auto-immune disease: the body’s immune system attacks the nerves which deteriorates the muscles.

There is no cure.


To maintain his muscles, my dad has been receiving a treatment called IVIG, a transfusion of antibodies to suppress his immunity. To have this treatment, he has been going to the hospital once every month for more than a decade. On top of that, he takes medications including steroids to boost his muscles. If you know about Guillain-Barre syndrome, CIDP is the chronic version of it. You can read more about CIDP here.

Actually, my main character from Book B has this disease too. She suffers from not only CIDP, but also depression and grief. Last year, God led me to set the project aside as it was not the right time to work on its third draft. And guess what? That time may be coming soon.

As you may noticed in my Projects page, I’ve used the image of a sea turtle for Book B. A sea turtle actually represents people with CIDP. The disease slows down their limbs which liken one as a sea turtle swimming and pressing on.


So, getting to the purpose of the title of this post. Recently, I saw a writing prompt from this website and crafted this poem, using my main character with CIDP:


She laughs.

She laughs with her lips and pain in her limbs.
She laughs with her throat and pain in her gums.
She laughs with her chest and pain in her face.
She laughs with sorrow and pain in her heart.

She lost health.
She lost passion.
She lost friends.
She lost herself.

Why does she laugh?

She laughs because in her pain, she found healing.
She laughs because in her grief, she found joy.
She laughs because in darkness, she found hope.
She laughs because in her emptiness,
she found Christ overflowing.



Copyright © Clarissa Choo, 2021.



Very Sincerely Yours,
Clarissa Choo-Choo Train



~

Clarissa Choo is a vessel used for Christ’s glory. Although she has lived in four countries, Heaven is her only Home. She desires to sow His seeds and to serve third culture kids, teens, and writers. Besides writing, she loves to wash dishes, chop ingredients into smithereens, and record hymns on her piano. Peek into her Christian TCK Email Ministry or read more posts.

Diamonds 2021 for Chronically Ill Christians

Special Events

What is Diamonds 2021?

Diamonds is an annual online conference for chronically ill Christians. Millions of chronically ill people battle impossible trials every single day. But so many of them feel so alone. The speakers of Diamonds 2021 want them to know they aren’t — not by a long shot. The theme for Diamonds 2021 is Purpose in Affliction — all about our identity and worth in God, and how our illness can strengthen our relationship with Him.


When is Diamonds 2021?

Diamonds 2021 occurs the second to last weekend in January — from Friday the 22nd through Sunday the 24th. You can join live for free, and if you miss anything you will still be able to view the recorded version by purchasing the all-access pass.


Who is speaking at Diamonds 2021?

This year, we have twenty speakers from around the world, and each of these amazing people has a special message of hope and compassion to share with you out of their own experiences with long-term illness.


What does Diamonds 2021 cost?

Because we know that many chronically ill warriors face burdensome medical bills, and because our goal is to uplift instead of adding just one more thing, Diamonds 2021 is 100% free while it’s live. 

After that, you can purchase the all-access pass to gain lifetime access to the conference content along with some exclusive bonuses. 


Where is Diamonds 2021?

Diamonds 2021 is completely online. We know that traveling with an illness is difficult, so we want to bring this right to you — even if you’re in a hospital bed or are housebound. You can register for Diamonds 2020 for free here.

Stay tuned this week for a special guest post by a Diamonds speaker and best-selling author Angela R. Watts!


Very Sincerely Yours,
Clarissa Choo-Choo Train

P.S. Why am I supporting this conference when I don’t have chronic illness? Actually, my dad has a rare chronic illness called CIDP, an auto-immune disease. The body’s immune system attacks the nerves which deteriorates the muscles.

To maintain his muscles, my dad is receiving treatment IVIG, a transfusion of antibodies to suppress his immunity, every month on top of medications including steroids to boost his muscles. If you know about Guillain-Barre syndrome, CIDP is the chronic version of it. You can read more about CIDP here.



~

Clarissa Choo is a vessel used for Christ’s glory. Although she has lived in four countries, Heaven is her only Home. She desires to sow His seeds and to serve third culture kids, teens, and writers. Besides writing, she loves to wash dishes, chop ingredients into smithereens, and record hymns on her piano. Peek into her Christian TCK Email Ministry or read more posts.